Callie June Shaffer
She is a 2.5 year old diagnosed in January 2019 with stage 4 high risk Neuroblastoma. We just found out in January 2020 that she has refractory neuroblastoma with ALK mutation. She has a new tumor on her kidney, she didn’t respond to any of her treatment. She endured 5 rounds of chemotherapy, tumor removal, 2 stem cell transplants, 12 rounds of proton radiation, in October 2019 we were told she was in remission. Then 3 rounds of immunotherapy, in January before her 4th round of antibodies a tumor grew and that’s when we found out she is treatment resistant.
We are now trying 10 rounds of radiation with a trial drug to hopefully put her in remission.