Mile #5 in honor of Maddie

Total: $446

(9 Funders)


Mile #5 Maddie 

Maddie’s story ....

Madison was diagnosed in January 2011 with a rare form of brain cancer. Maddie's diagnosis is brain cancer with hydrocephalus and also cancer in her spinal fluid with a spot on her spine. It's called choroid plexus .She was the youngest dx there at only 4 months old.She endured so much in 8 months ..!she was in ICU for 7 weeks during that time she had Tumor removal , drain put in her brain to drain the fluid from her brain,Broviac ( line ) put in her chest and immediately started chemo . Then the day before we got discharged she had Shunt placed. She had a total of 11 cycles of chemo all before she turned 1. To many MRI's, spinal taps and inpatient stays in that short 8 months.The drs put her in remission when she was 13 months old ( October 2011)She still was getting spinal taps, MRI's every 3 months . Everything was going well , she was finally free living outside the glass. But unfortunately after her 9 month scan and I was 7.5 months pregnant with Avah her dr called and told us that she had relapsed with two new brain tumors. She immediately went in and had a port placed and began outpatient chemo. But Nothing was working , so on September 11, 2013 she underwent another tumor removal and had a tumor marker test done and it came back with 4 different chemos/ meds that will hopefully get rid of her cancer/tumors. She started the treatment the end of September 2013 and she is still on this treatment today .It is a clinical trial and not knowing if she will beat this. She gets 4 different chemos orally every single night at home. 3 of them are liquid and the other one are capsules that she chews with Reese's peanut butter cups bc she can't swallow them yet.She goes into clinic 1- 2x a month for counts check, urine check and to meet with her drs and she gets Iv pentamidine to help her fight off certain types of pneumonia. 
Maddie is 7 years old right now , she has been fighting this battle for almost her whole life .We are basically taking it month by month. She was taken off the clinical trial in September 2016 bc her body is just to tired . The treatment is Doing more harm than good to her body 
She is living one day at a time ... fighting stronger and braver every single day .

Brain tumor can increase pressure on the brain and cause the skull to get bigger. A CPT may be noncancerous (benign) or cancerous: ... Choroid plexus carcinoma (CPC), the cancerous form, grows faster and are much more likely to spread through the cerebrospinal fluid and invade nearby tissue.

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