He endured radiation twice, traveled far from home for a clinical trial and out of the country for experimental treatments to stop the beast.
He lived with this aggressive, inoperable tumor for 30 months, fully aware of his prognosis and suffering the loss of friends to DIPG and other childhood cancers.
When he grew up, he wanted to have a family and be a dad. He did not get that chance.
Charlie died August 6, 2018. He donated his tumor for research, so that one day maybe kids could LIVE with instead of die from brain cancer.
Charlie had a quiet strength about him, never complained about his situation and tried to stay positive. He loved the woods, pizza, diners and pie. He was thankful for a good life, and used his voice to advocate for change,for all the younger children who have cancer and don't get the chance to grow up. Connecting with others who understood what it was like to be a teen with cancer was so important to Charlie. He believed in the mission of Stillbrave: supporting kids, teens and their families. Tom was there for Charlie, please support Stillbrave.