Justin Alexander Rosner-
Diagnosed with Stage 3 Embryonal Rhabdomyosarcoma on Nov 1, 2017 (12 cm tumor found behind his bladder). He was just 15 months old at the time of diagnosis. Justin completed a 43 week treatment plan, which included several cycles of chemo and 28 rounds of proton therapy radiation. He handled treatment like a champ and had an overall great response. It came as a complete shock to us all (doctors included) when he relapsed right at the end of treatment in Sept 2018. The new cells were too aggressive and growing on treated areas. After a few attempts at different chemos and many medical consultations around the country, we were running out of options. The tumor was fast growing and vicious, beginning to protrude from Justin’s tiny body. Managing his pain was becoming increasingly difficult for hospice and he had to return to the hospital. He was referred to as Superhuman by the medical team, as no one had witnessed a child his size on such high levels of pain meds. His will to live was extraordinary. Justin’s battle ended on Feb 5, 2019. He was 2 1/2 years old. His tumor was donated with the hope of bringing us closer to ending the nightmare of childhood cancer. His tumor was so aggressive in nature that has and continues to be studied closely by the national tumor review board.
To know Justin was to love him. He gave his time and heart to anyone who cared to spend a few minutes with him. He found joy in ALL things. He knew how to live and love. He connected deeply with music. He adored his big sister Kacey. And he NEVER, EVER let cancer steal his spirit. Justin (our J bug) was and will always be our brave little soul.
Please let us know if you need any additional info. Thank you for including Justin on this amazing journey once again!!
Melis & Steve Rosner