This is my daughter Abby, who is now 11 years old. Abby was diagnosed with an sPNET (supratentorial primitive ectodermal tumor) in January 2016 when she was 5 yrs old. She had brain surgery to remove the whole tumor, 6 weeks of daily radiation, and then 4 rounds of in-patient chemo, which had her and I in the hospital for 2 weeks a month for 4 months.
We are very grateful to say that Abby has been in remission since August 2016 and is now a 5 year SURVIVOR!! She continues to get brain MRIs every year, takes a thyroid pill every morning, and gets a growth hormone injection every night. She is such a strong fighter and continues to amaze us every single day!! We are in Raleigh, NC, and Abby gets her treatments at Duke Children's Hospital. She is currently in 6th grade.
