Alexandra was 3 1/2 when she was diagnosed with Medulloblastoma and 13 months later, she was gone from this world, just 5 weeks before her 5th birthday. Even through cancer, she was a happy, energetic, imaginative and feisty little girl. She could not have enough stuffed animals and while her favorites varied, there were a couple of "constants" who came everywhere with us. Because she had very delayed speech, it was never clear to us how well she understood what was happening to her. And she kept rebounding from the beast, so we were full of hope that she would be with us far longer than she was.
She left behind a loving brother, Samuel, who was only 7 when she died. We honor her in many ways; most meaningful to us is a return to the 4th floor of Children's National in DC where much of her care was delivered, to bring toys to current cancer warriors, and visit with them in the Ronald McDonald room, every Christmas season. Since we were stuck "in-patient" during the winter holidays, we understand how badly families need some "normalcy", while fighting the good fight.